Edward Hopper Morning Sun |
Recently
I had to have an invasive procedure combined with a biopsy. Cancer is the slow-moving
but implacable nightmare ogre stalking my family. I grew up on my mother's
accounts of my Slovak grandmother Mary dying young.
"She
was in so much pain. They never gave her enough pain killer. They claimed she
shouldn't have felt so much pain."
I
lived those scenes, in a white-walled, fluorescent-lit, merciless and cold American
hospital, where my tough-as-nails, refined-as-spun-glass grandmother, who was
born in a peasant village in Slovakia, breathed her last. It all transpired
before I was born, but through my mother's obsessively repeated and
broken-hearted accounts, I lived those scenes, and I hated the white-coated,
robotic, stiff Americans who refused my grandmother adequate pain-killing
drugs, and I have never come to terms with the God who smote my family.
And I
have always known that it would happen to me, right down to the robotic doctors
refusing me pain killing drugs, and I have always known that it was just a matter
of time.
My
brother Mike, of course, died at 34, while I was in Nepal. Antoinette, just
four years ago. I've been a shredded, mourning wreck ever since, though I don't
think I show it. Joe, last year. Me next, I guess.
So, I
had to have an invasive procedure with biopsy the other day. Haven't gotten the
results back yet. Hoping for the best.
The
facility I went to was wonderful. Everyone was beautifully present, gracious and
professional, from the intake person, to the nurses; even the anesthesiologist behaved
like a mensch, which is rare.
The chief
nurse chatted with me enthusiastically about the Marcal Paper Plant, once a
landmark on route 80 near Paterson, that burned down in January, 2019. That
distracted me from the procedure, as did her charming personality.
She then
stared at a computer screen and said, in a getting-down-to-business voice, "I'm
going to ask you some questions that I must ask you by law."
"Okay,"
I said.
"Is
anyone trying to hurt you, or is anyone threatening you?"
No, I
said, thinking wow, what an absurd question. What has that got to do with this
biopsy?
"Do
you have thoughts of hurting yourself?"
I can
be a contrarian person and I resolve, when receiving health care, to be as
cooperative as possible. For that reason, though it would have been easy enough
to say "No," I said, "Yes."
The nurse
stopped. She looked shocked. "Really?" she said, looking down at me
in my hospital gown, all hooked up to machines and tubes, lying on the wheeled
and barred hospital bed.
"Yeah,"
I said.
Well,
everything changed after that. And of course I have come to regret being
honest.
New personnel
arrived. They informed me that life is worth living. One had the courage to
encourage me to pray. I was grateful for that.
Belligerent
atheist activists have so stripped our communal life of the sacred. I had no
problem with being encouraged to pray, and if you have a problem with it, you can
go jump in a lake. But pray about it first. :-)
By
the way, "You can go jump in a lake" is not real encouragement to
jump in a lake. It's a way of saying, via an idiom, that I am sick to death of
the cranky, humorless, jack-booted, fascistic New Atheists, and I wish they'd
not go into a tizzy when a kindly health care professional, trying to save a
life, encourages a patient to pray. And if that explanation doesn't work,
really, you can go jump in a lake.
I think
about it daily. If I didn't think about it, I'd be crazy.
I've
never mattered to anyone. Oh, for the love of God, please don't feel the need
to insist that I matter to you. I don't. I'm not talking about someone liking a
Facebook post.
I'm
talking about this. I am alone every holiday and every birthday, and I almost
always have been with the exception of Peace Corps, when holidays and my birthday
were glitter-colored phantasmagorias of communal hugging and kissing, drinking
and singing and dancing. There's something to be said for being a member of a
cult.
When
I have to fill out the form that says, "Who should we inform if you faint
or die or need a ride home?" You don't want to know how many times I've
had to make up names and phone numbers for those forms.
Uncle
John loved me, I think, but he spoke no English and we shared three weeks
together in Slovakia when I was a child and he was an old man. That's a pretty
slender thread to be holding on to all these years.
And,
no, "I like your Facebook posts" is not the same thing as "I
love you" so don't say it is or I'll be forced to smack you.
I've
failed at everything. I had so much hope for God through Binoculars. I sent copies of it to various authors,
many of them bestselling, before its publication, in order to get blurbs. The
blurbs were over-the-top positive. "Beautiful … profound …
important."
I worked
fulltime the entire month after it was published begging outlets to publicize
it, review it, invite me to speak. I got, what, three, four reviews? All of
them terrific, followed by zero sales. My writing has gone nowhere and it will
never go anywhere.
As
mentioned, since the second to last surgery, I have been dealing with
torture-level pain. The bursts of pain are, for the most part, short-lived. The
pain can last anywhere from a minute or two to, in the longest instance, 24
hours. I've been to five doctors. Tests show I'm not making it up – my body is
breaking down. No one knows why, or how to make it stop.
Losing
every member of the only family I've ever been part of is overwhelming. You
really can't convey it to people who have relations with whom they have
contact. The only way I can begin to communicate it is thus: I have a few
family photos. Mike, me, Tramp, Lady, Artie, Benjie, Antoinette, Phil, Aunt
Phyllis, my parents, all of us. I have recordings of them speaking. And there
is a story with each photo. No one wants to see those photos or listen to these
recordings. No one wants to hear the stories. I am the sole remnant of the
living in a city of the dead.
Alone,
in pain, and a failure.
I
received a follow-up phone call from a very officious sounding woman. She gave
her name and rattled off fifteen numbers, that she bade me to jot down. It was
a weird conversation. "Hello? Ms Goska?" Now, see, if they knew anything
about me, even if they just asked, they'd know that I prefer "Dr Goska."
I worked hard for that PhD.
"Ms
Goska, your response to the survey questionnaire made its way to me. Please jot
down these numbers." I did, dutifully. I have them in my notebook. What are
they code for? I just googled them. They are billing codes. I found a seven
page document about billing. I didn't understand much of it.
The
woman who phoned me sounded bored, uninterested, and unhappy. She immediately
brought up drugs. I did not bring up drugs. She named two doctors who might authorize
her prescribing mind-altering drugs to me. Neither was a psychiatrist. I never
asked for mind-altering drugs. I don't want mind-altering drugs. At no point in
the conversation did she ask anything about me or my life. Nothing.
She
just phoned back. I won't return the call.
I think
next time I'm asked this question I'll duck it. I don't like to lie, not even
when a Trader Joe's cashier asks, "Find everything you were looking
for?" I don't want to say "No," even if that is the answer because
then it would be his or her job to "help" me – emphasis on the
quotation marks – to find what I've given up hope of finding. No, I just want
to pay and go. So I don't answer. I don't lie, I just say, "No bag, please."
No Trader Joe's employee has pressed me after that.
The
way people talk about suicide and euthanasia really pisses me off.
Some
examples:
When
people post "Repost this suicide hotline number to prove that someone is
always listening." Somehow these memes are always posted by impersonal,
argumentative, self-righteous Facebook posters who never engage in any
substantive or warm dialogue with anyone. If the goal is to prove that someone
is really listening, why not listen? And engage with someone who wants someone
else to talk to?
Someone
posts a personal triumph. Congratulate that person.
Someone
posts a cute puppy picture. Say, "Oh, how cute."
Someone
posts a picture of their nephew graduating high school. Type, "Congratulations!"
*That's*
how you convince people that someone is listening. By *listening.* And
*respoinding.* Not by posting impersonal, coercive memes about suicide hotlines.
You know what those memes prove? Not that someone is listening. That someone is
virtue signaling.
See? The
basic common humanity is sucked out of interactions and replaced by partisan
memes. "I hate Trump … If you voted for Trump you are an asshole … If you
are feeling suicidal, phone this number." What if the suicidal person was
a Trump supporter, and you just posted fifteen posts calling Trump supporters
halfwit knuckle-draggers? Sheesh.
I
also reject the all too easy equation that suicide = mental illness. People I
know who have committed suicide (and I write about them in God through Binoculars, the book no one is buying) had real life
problems. One had a dead-end academic career he had poured the best years of his
life into. He was constantly put down by his superiors.
Another
had just been rejected by a man she loved, and she was at an age when, for many
women, it is make-it or break-it for marriage and family. I loved how she
looked, but I could see where men might look right past her. The old biological
clock was clanging loudly.
Another
friend who made a serious attempt at suicide, one I, clumsily, aborted, was a
brilliant lesbian living in a less-than-brilliant New Jersey suburb, working at
a less-than-brilliant community college job. Her frustration, loneliness and
alienation were palpable.
I
don't think any of these folks were nuts. I think they were hitting very hard
brick walls. Insisting that they were crazy, and that drugs were the solution,
trivializes the very real life challenges they faced, all of them, as far as I
could see, without support from philosophies that emphasize persistence against
very tough odds.
And
speaking of philosophies that emphasis persistence against very tough odds. I
am still here because of the Catholic Church and the models of my ethnic
heritage. Poles and Slovaks march on through the worst. Quitting is not
allowed. But if you really can't take it anymore, you go quietly, not asking
for anything before you go, like a recent Polish immigrant, a hard-working
husband and father, who hanged himself at home down the street from me not too
long ago, and a very lovely Polish immigrant, with an advanced degree, who,
without any fuss, drowned in the Passaic River.
Can
you not understand her story? She got an advanced degree. Her parents probably
witnessed the worst of communism and the dregs of the Nazi crucifixion of
Poland during WW II. She immigrated here with high hopes. Maybe she ended up
cleaning houses. There is no Alexandria Ocasio Cortez to sing dirges for such
Polak immigrants. We are somehow not as poignant as Central Americans. We write
our own stories, and if the plot peters out, there is nothing left for us but
the denouement offered by rope or river.
There
is visual documentation of the retrieval of her body from the river. The light
is late winter dusk grey. The snow on the ground looks fluorescent. There is a
dark gash, a path through the snow to the river. Men in clunky rescue gear gouged
this path to the river. Red and white lights flash on adjacent suburban roads
slipping into darkness. A firetruck towing a rowboat drives by. There is, of
course, yellow tape, as if yellow tape could hold the evil out or the despair
in.
The
reporter of her story has a Dutch last name. The Dutch first settled this
state. I've had college professors who were Dutch. I have bought fresh corn at
Dutch-owned stands. My Bohunk brothers used to sell raw fur to a Dutch roadside
stand. I could never afford their pumpkins, huge, aesthetically perfect, and
always had to settle for smaller, cheaper, and more pinched, asymmetrical supermarket
pumpkins. What could a Dutch American reporter, his ancestors in this county
for four hundred years, know of the passions and agonies of a recent Polish
immigrant?
The video
ends in darkness, the only light flashlights pointing toward the ground,
perhaps the body, the weight to be dragged away from the river, flown to
Poland, prayed over there, and settled as cremated ash in the Polish earth that,
perhaps, she should never have left.
So,
no. I don't like the number codes. I don't like the drugs. I don't like the insistence
that this choice is about mental illness and not about real life challenges
that the one making the choice is sure he or she can't solve.
There
are a lot of us. Alone, unimportant to others, dealing with health issues that
make every day life increasingly hard. The simple truth is, no number code, no
prescription, and no hotline number will change any of that. Death is
inevitable. It may as well occur before things get too messy / painful /
humiliating.
What
do I mean by messy? The guy across the hall from me had always been odd; his comments
became less and less tethered to consensus reality. He always used a cane; he switched
to two, and then a wheelchair. He lost at least fifty pounds, seemingly overnight.
Official-seeming
people came and pounded on his door. I got no sense that they knew him at all, or
cared about him, but, rather, that they had been dispatched by some social
service agency. There were rumors.
Before
he was finally wheeled out on a stretcher, there was an eruption of flies of
every kind. They entered my apartment. On some days I had a hundred dead flies
on my bottom refrigerator shelf. The smell from him was overwhelming. I don't
know what this African immigrant, who appeared to have no local family or
friends, died of. I know it was a mess.
Mind.
I'm not arguing for suicide. And, again, when presented with a suicidal person,
I've done everything I can to be a roadblock. I'm arguing for respect for those
who choose it.
Final
comments. I am not, right now, close. My cognitive functions are still pretty
good. I can still lift weights. I can still work. So no need to hurl your body
between me and the Passaic River. Thanks.